Cystic Fibrosis
I Have Cystic Fibrosis. This Is How I Have Sex
"I’ve had sex while using oxygen before. You have to learn how to work with it, because it’s easy to get tangled in the tubing."
They're Young, High-Risk, and Terrified of Coronavirus. And They Really Need You to Stop Partying and Hoarding.
“You’re never really going to know that you were the one person who gave coronavirus to someone else who eventually got very sick.”
'Five Feet Apart' Portrays the Grueling Realities of Cystic Fibrosis
"CF is also disease I’ve fought bitterly for 32 years since being diagnosed at six months old...'Five Feet Apart' acknowledges the hard truths of fighting a losing battle."
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What It’s Like to Get a Double Lung Transplant in Your 20s
“No one knows what cystic fibrosis is and how severe it is.”
Canadians With Cystic Fibrosis Live 10 Years Longer Than Americans
Canadians had a 77 percent lower risk of death over the course of this study than US patients with no health insurance.
The Cure Culture
I'm not mad that my best friend died from a serious genetic disease. I'm mad society told her she would be cured.
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